Pyridostigmine bromide, ergotamine, octreotide, ephedrine, pseudoephedrine, yohimbine, theophylline, methylphenidate methyldopa, non-steroidal anti-inflammatory drugs (NSAIDs, such as indomethacin), and some anti-depressants have all been used from time to time, with varied success. Recently, I’ve been using High 5 Zero Hydration Tablets which are a fraction of the price in the UK and have the same effect as using Nuuns,” Katherine Warburton explained. For two years! ( Log Out /  POTS often begins after a pregnancy, major surgery, trauma, or a viral illness. @font-face{font-family:'Circular-Bold';src:url("https://assets.avvo.com/avvo-ui/0.20.5/fonts/avvo_ui/circular/circular_bold.woff") format("woff")}.avvo-badge .st0{fill:#153860 !important}.avvo-badge .st1{fill:#010101 !important}.avvo-badge .st2{fill:#15467A !important}.avvo-badge .st3{fill:#FFFFFF !important}.avvo-badge .st4{fill:none !important}.avvo-badge .st5{fill:#F89838 !important}.avvo-badge .st6{fill:#ED514C !important}.avvo-badge .st7{font-family:'Circular-Bold', Avenir Next, Avenir, Century Gothic, sans-serif !important;font-weight:bold !important}.avvo-badge .st8{font-size:20px !important}.avvo-badge .st9{letter-spacing:-1px !important}.avvo-badge .st10{font-family:'Circular-Bold', Avenir Next, Avenir, Century Gothic, sans-serif !important;font-size:14px}.avvo-badge .st11{font-size:65px !important}.avvo-badge .st12{text-anchor:middle !important}.avvo-badge .st13{fill:#969696 !important}.avvo-badge .st14{display:none !important}Peter Anthony BohanClients’ ChoiceAward 2016. The SSA offers two disability benefits programs to disabled individuals, which are Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). Whether or not you qualify for disability and, as a result, are approved for disability benefits will depend entirely on the information obtained from your medical records. I got copies of all my medical records. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. These functional impairments should include home-based activities (e.g., making the beds, preparing meals, shopping) that you are unable to do, and job-related activities (e.g., sitting, standing, walking, lifting, carrying, concentrating, staying on task) that you are unable to do. Ehlers-Danlos syndrome (EDS) refers to a group of inherited disorders that involve your connective tissue. Postural orthostatic tachycardia syndrome (POTS) is a blood circulation disorder characterized by two factors: A specific group of symptoms that frequently occur when standing upright. Medications, such as fludrocortisone or midodrine, can help the symptoms of POTS by increasing the blood volume and narrowing the blood vessels. She shared this letter with another family and they used it with their own doctor. Some cases of POTS are thought to be a type of partial dysautonomia. [Reference: Abed H, Ball P, and Wang LX. https://www.ninds.nih.gov/Disorders/All-Disorders/Postural-Tachycardia-Syndrome-Information-Page. This is available for people who can no longer work due to physical or mental disability. Careful documentation of symptoms, such as light-headedness, fatigue, palpitations, syncope, brain fog, and exercise intolerance, should be documented in the medical records, along with any objective testing to confirm the diagnosis. Ivabradine (a sinus node blocker) and beta blockers, like propranolol, may help some patients. Diseases and Disorders That Qualify for Disability Benefits ' ... – Includes syndromes such as Marfan Syndrome and Sjogren’s Syndrome 9) Skin disorders – Includes skin conditions that are hereditary, congenital, or acquired through a pathological process 10) Digestive tract problems Other symptoms of POTS can include chest pain, dizziness, weakness, blurred vision, fainting, migraines, trouble sleeping, chronic fatigue syndrome, and more. In six weeks! Qualifying for disability benefits requires proving that you have a medical condition that impairs your ability to efficiently perform daily tasks and all types of work. A mental health condition is considered a disability if it has a long-term effect on your normal day-to-day activity. How to Work with Your Doctor to Get Great Documentation, Long List of More Ways To Improve Your Chances. You are still welcome to leave comments and we hope that other readers will come by to reply. At Law Med, that's what we do. She put together materials for her doctor, and he wrote a letter. Qualifying for disability benefits with this condition Ehlers-Danlos Syndrome and Social Security Disability To qualify for SSDI or SSI for Ehlers-Danlos syndrome (EDS) your condition must be so severe you are unable to work for at least 12 continuous months and meet the nonmedical requirements for one of the two disability program. She gets help in her home 99 hours each month with shopping, cooking, cleaning, bathing, dressing, mobility, and personal care. Because disability claims for POTS are often based on self-reported subjective symptoms from the patient to the doctor, that information must be consistent, thorough, and well-documented in the medical records. If you are 24-31, you must have worked at least half the time since turning 21. The Social Security Administration (SSA) is generally skeptical of disability claims based solely on chronic fatigue syndrome (CFS). There is hope.”. If you are applying for Social Security Disability for POTS or Dysautonomia, there are many things you can do to increase your chances and help things go more quickly and smoothly. Here’s how she did it Ivy Applies for Disability, Dianthus applied for disability and also applied for a state program that provides free home aides. The National Institutes of Health describe Postural Orthostatic Tachycardia Syndrome (POTS) as one of a group of disorders that have orthostatic intolerance (OI) as their primary symptom. Whether you are applying for Social Security Disability (SSDI) benefits or for long-term disability (LTD) benefits under an employer-sponsored group plan (ERISA), working closely with a doctor that understands POTS, and with a lawyer that can work with your doctor, are extremely important to properly documenting in the medical records your condition and its disabling symptoms. Each program has technical requirements that need to be met in addition to the medical criteria needed to qualify. Sjogren’s syndrome is listed in Section 14.10, under immune system disorders. [Reference: https://www.ninds.nih.gov/Disorders/All-Disorders/Postural-Tachycardia-Syndrome-Information-Page]. The documentation in the medical records must also include a description of what specific activities you can and cannot perform (“functional impairments”) because of your symptoms. The criteria for qualifying for disability benefits based on Sjogren’s syndrome are: Two or more body systems or organs affected. Then she decided to learn more about how the process worked and take some steps to improve her case. Simply being diagnosed with Guillain-Barre syndrome will not automatically qualify you for disability benefits. But that's not enough. Next to every symptom, I included an example. (HUD, Section 8 & Low Income Housing), Stimulus Checks Tips for Parents (Including Parents of Adult Disabled Children). Claims are rarely approved at the initial or reconsideration levels, and even at the hearing level, most Administrative Law Judges (ALJs) are reluctant to pay benefits except in the most compelling cases. How CCK Can Help You Obtain Long-Term Disability for Thoracic Outlet Syndrome. The Social Security Administration (SSA) will examine the symptoms that a patient is experiencing because of POTS. For example, let's say you worked as a pilot for several years before you developed POTS. 2012 Mar; 9(1): 61–67.]. There is a list of specific conditions which automatically qualify as disabled on the Social Security website, but if you do not have one of those conditions, Social Security will evaluate your claim individually. For fatigue, I listed how I fell asleep during a meeting I was hosting. For dizziness, I explained how my standing 10-20 minutes my symptoms get severe, which could lead to passing out. 2 Tourettes Action does not specialise in benefits and is unable to assist with individuals’ cases or help fill in claim forms. The faintness or lightheadedness of POTS are relieved by lying down again. Conditions associated with hypermobility include lupus, polio, Down's syndrome, chronic fatigue syndrome and fibromyalgia. Information for Educational Purposes Only. I am completely overwhelmed by what is facing me in trying to get disability, but you are offering me a priceless lifeline. POST (Postural Orthostatic Tachycardia Syndrome) a form of orthostatic intolerance that is associated with the presence of excessive tachycardia (rapid heart rate) and other symptoms upon standing. It may make individuals unable to exercise because the activity brings on fainting spells or dizziness. I thank you from the bottom of my heart. Student loans can help with course fees and living costs while you study. She applied again, and got approved. Your disablity lawyer must work closely with your treating physician to get the proper documentation of your specific findings and impairments into the medical records. Change ), We are sorry that we are unable to respond to comments at this time. Vascular Ehlers-Danlos syndrome is a severe form of the syndrome and affects the blood vessels in the body. You can apply for funding to cover extra costs if you are disabled. However, these individuals must exhibit symptoms that limit their ability to complete work-related tasks, such as anxiety and fatigue. At least one system/function/organ affected to a moderate or severe level. Patients with POTS have tachycardia (rapid heart rate) that originates from the sinus node, which may be documented on an electrocardiogram (EKG), echocardiogram, or Holter monitor. The typical Social Security disability application take three years, but Holly got approved in just six months. Orthostatic intolerance is a term that is sometimes used to describe symptoms of PoTS. For example if you have liver disease or depression caused by alcohol dependency, that would be an impairment. There is currently no clear evidence to suggest PoTS itself causes an increased risk of catching the virus. Holly also created and sent in this Fantastic Medical Synopsis for Disability, Daffodil’s mom helped her get approved in just two months based largely on a great letter from her doctor. Current thinking is that there are several mechanisms. Because Asperger’s syndrome is an Autism Spectrum Disorder, it is among the conditions that qualify for disability benefits. Social Security Disability Programs. But does it qualify for Social Security disability (SSD) benefits? I am only 31.”. I’ve just read a little bit so far and I can see it is so much more helpful than what my disability lawyer has shared with me. Qualifying for disability benefits due to POTS is a matter of proving that the individual has impairment significant enough to make it impossible for them to effectively maintain employment. This Guide to the List of Recognised Disabilities is based on determinations approved in 2005, 2006, 2010, 2011 and 2014 by the Secretary of the Australian Government Department of Social Services.. Part 1 - Recognised Disabilities. Anyone at any age can develop POTS, but most individuals affected (up to 80 %) are women between the ages of 15 to 50 years of age. Dr. Rowe’s Outstanding Disability Letter for POTs and ME/CFS, How I Got a Home Aide for ME/CFS and POTS, Fantastic Medical Synopsis for Disability, The Fantastic Disability Doctor Letter of Miss Ruby Fierce, Stimulus Checks for Adults Who are Dependents, Three Places to Sign Up For Stimulus Checks, How to Get Groceries Delivered with SNAP Food Stamps (EBT), How is My Rent Calculated? She was approved for 42 hours per week of care in her home. You can use this letter as a tool with your own doctor as well. Please share this page with others by pressing one of these magic little buttons: What a kind and generous thing you are all doing on this website. And bursaries from universities or charitable trusts are disabled to a patient 's heart... Down 's syndrome, Chronic fatigue syndrome and low Income programs, Social Security Administration ( SSA uses... Recover from a viral illness before she applied and was able to get approved:! 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