Leeds took the low road to a fourth Grand Final victory overSt Helensin five years, with the tiny scrum-half Rob Burrow providing the decisive contributions in this land of the giants. One of Great Britain's greatest rugby league players, Rob Burrow, is being helped into a swimming pool by his wife, Lindsey. "He always says, 'find somebody else, you're still young'," she explains tearfully. At the end the interview, Rob just had a bit of time to play the Yes/No game, showing he's clearly still got his strong sense of humour: Researchers in Sheffield working on treatments for motor neurone disease say they're making good progress, but need more funding. More info. But this once cheerfully garrulous man is now a silent prisoner in his body as MND paralyses him and prevents him from talking. I can't move my body.". Its a happy place.. Please dont hesitate to get in touch if you need us: 2023 MND Association: Registered in England. If I do not bring the topic up, that conversation will never happen. That depth of friendship, which he has with so many of his former teammates, means Rob is relieved he resisted offers to leave Leeds. Then it takes your legs. At 40, the father-of-three gives audiences a glimpse into his family life on camera. Her ethnicity, and the fact she was a woman, finally mattered less than her deep expertise in MND. "It's there in the patient's mind. Macy has the deepest understanding of Robs ordeal and she once said to her mum that she wished she could give her voice to her dad to help him. New book details the enduring partnership of the former Leeds Rhino and his wife, Lindsey, and their refusal to give up living life to the full despite his MND. England football legend Gazza will look back at his life and career at an event in Pontefract this summer with all money raised going to the Rob Burrow MND charity. His sporting profile meant she was invited to speak on television about Rob and MND. What does your dad always say, Rob? It is the only way that the former England, Great Britain and Leeds Rhinos player can manage to walk without suffering debilitating pain in his joints caused by Motor Neurone Disease (MND). Different context but great signs for England Rugby.". Get latest scores and headlines sent straight to your phone, sign-up to our newsletter and learn where to find us on online. In the new BBC documentary, Rob Burrow: Living with MND, viewers witnessed how motor neurone disease can affect the body. So I worried about Rob getting some form of dementia or Alzheimers which is irrelevant now., Rob has finished typing. It echoes how, for many decades in the US, MND was called Lou Gehrigs Disease after the great baseball player who was struck down in 1939. There is no evidence that anything causes MND. He left Wellens floundering with a classic sidestep and held off a couple more desperate cover defenders to slide over next to the posts. The reality of day-to-day life with MND for rugby legend Rob Burrow MBE has been put under the spotlight on prime time television. In another scene, his mum, Irene, spoon-feeds him. I would probably say no, just because it was bad enough seeing Rob play and theres always the question at the back of my mind: Is [MND] sport-related? I remember seeing how much Robs mum and dad worried when he was playing. Rob has inspired so many people to join the fight against MND. Kevin Sinfield greets Rob Burrow on day five of his seven marathons in seven days fundraising challenge for the Motor Neurone Disease Association. Burrow and Kevin Sinfield, the Leeds captain who lifted the Super League trophy for the fifth time since 2004, had both said "It's not how you start, it's how you finish" before they even left the pitch. Rob won eight Grand Finals with Leeds Rhinos as they dominated rugby league from 2004 to 2017 and. I hope to get a bit better through various treatments. She is doing some matinees and evening performances at Leeds Grand, the Lowry in Salford and Newcastle., Robs smile widens. Rob also introduced a no-tears policy as an affirmation of everything good that remained in their changed lives. Rob urged her to live in the moment and savour every day they had left together. I would have asked [the restaurant] but Rob smiled and said: I dont think blended chicken nuggets would taste very nice. But his appetites so much better than it was., I ask Rob if he worries about not being able to swallow one day, which would mean the insertion of a PEG (Percutaneous Endoscopic Gastrostomy) so he can be fed through a tube. "Everybody would rather start a match than be on the bench, but you do whatever is best for the team. The former Leeds and Great Britain scrum-half is now confined to a. He had a wonderful career and he loved playing rugby. While Burrow jokes with the doctors and tries to maintain a positive attitude, the question of end-of-life care hangs in the air. More info. But it can't sap your spirit". Sinfield added a simple goal, and the Rhinos had poached an 8-2 lead. A montage of his daily life played out on the big screen and to viewers at home, who were clearly moved by the scenes. Shell regularly take me for a walk a lap of the house to make sure my back doesnt ache and to keep me moving. Sometimes, his short bark of mirth makes it sound like he is crying or struggling for breath. The lights are on, but no-one's home. Rob said to me [last year]: I dont know if this is going to be my last Christmas. That really hit home. "You would not imagine how much Lindsey's life has changed," he said. In the heart-wrenching documentary, he says: Im a prisoner in my own body, thats the way MND gets you. All the Zoom conversations, emails and texts cannot match being with them as they tell me about their summer holiday, their children and the state of Robs health. I enjoy watching the Rhinos on TV but I sometimes wonder: How the heck did I compete for so long? But I dont criticise them because everyone can see a gap on the TV but I know how hard it is to do with a split-second on the field. The Rob Burrow Leeds Marathon will take place on Sunday 14 May 2023 and will start and finish at the iconic Headingley Stadium, where Association Patron Rob accomplished some of his greatest sporting achievements. Rob Burrow scores the opening try during the Engage Super League Grand Final match between St Helens and Leeds Rhinos at Old Trafford in 8 October 2011. I am always open to advice and comments by others and take on-board what has been put forward if applicable. Leeds Rhinos and OXEN have today revealed a new training wear range as a celebration of former player Rob Burrow MBE, and in association with the MND Association. In Robs book, Dr Jung explains that her MND patients want to find peace in their heads. I am so glad I did not move. Absolutely legends Rob Burrow and Kevin Sinfield. Rob shows us this every day., The Burrows have accepted the diagnosis of MND, which they received on a shattering day in December 2019, but Rob continues to fight the medical prognosis that suggested he had two years to live. S J S TRAFFIC MANAGEMENT LIMITED Mar 2023 - Present1 month Albany, Western Australia, Australia Customer Advisor Assurant Sep 2014 - Present8 years 7 months Crewe, England, United Kingdom Retail. I was afraid of failing, he says, but never scared of playing., We become nostalgic when I ask Rob which game he would watch again if he could relive only one last match. His wife Lindsey agrees as she revealed the illness has taken hold faster than they had anticipated. Lindsey will soon settle Rob into his special hospital bed, which can be raised, as it is hard for him to lie on his back. Burrow and Sinfield were granted the honour for their outstanding sporting achievements and work to support those with motor neurone disease (MND) at a ceremony in Leeds on Wednesday. In December 2019, Rob Burrow was diagnosed with motor neurone disease (MND) at the age of just 37. I miss being able to chew and taste the different textures. He completed seven marathons in seven days in 2020, and then in 2021 he ran 101 miles in 24 hours, raising millions of pounds for MND research and support. More research needs to be done.. Dr John Hamlin: 7 Stories of MND. pic.twitter.com/LvByIpWfNq, 2023 MND Association: Registered in England. In a similar way we have considered the courage of Lindsey, who remains so bright and engaging while being his full-time carer, a part-time physiotherapist as well as a mum to their three children under the age of 10. He cant swallow easily and so his food has to be pureed. It tells the story of how much she looks up to Rob and what a brilliant father figure hes been to the children and how much they think of him. I know how I feel more than anyone and I have never been anything other than positive., He lost all sense of smell and taste last month. The 40-year-old has to speak via a computer, using recorded samples of his voice. As a member of Deloitte's Global Employer Services group, I specialize in expatriate taxation, serving international clients in the areas of the management of international mobility policies,. She said how well I am doing. Leeds Rhinos legend Rob Burrow has been diagnosed with motor neurone disease (MND). This may include adverts from us and 3rd parties based on our understanding. "I need my parents for everything. I keep hearing Rob laughing while hes reading.. Jude's son Jody died of MND in 2017, when he was aged 38. Yes it is a sad story, but there is a lot of hope in there as well, seeing the kids and just how much they love life. Alongside his friend and former teammate Kevin Sinfield, he picked up an award for raising awareness for Motor Neurone Disease. One of his autobiographys central themes is how Rob was doubted for so long by people who thought he was far too small to make it in rugby league. In a BBC Look North interview, the ex-Leeds. Motor Neurone Disease is a progressive and ultimately fatal disease. Analysis and opinion from the BBC's rugby league correspondent. As he accepted the award, he used a voice machine to address the crowd in Salford's Media City. When he is ready a recorded version of his voice says the words out loud. While Rob methodically types his answers, Lindsey chats to me. Its really difficult. Arguably the star of the documentary is Macy, who describes a biography she wrote about her father as part of a school project. It was never intended to be in the documentary, but some of the things she said really fitted in well. Not so long ago I asked Rob: If you could go back and we were told that rugby had a part to play in you getting MND, would you change anything? He said absolutely not. She almost narrated the story through it. When Sinfield ran seven marathons in seven days last December, on behalf of the Burrow family and the fight against MND, Rob said: We all need a friend like Kevin.. Robs moving memoir, about his rugby career and his extraordinary resolve as he fights against MND, is published this week. You and your family are truly an inspiration . People come to her clinic and say they think they have Rob Burrows Disease. The stuff Lindsey does for me shows her true love. Id much rather that than feeling sorry for myself. "It affects the sufferer but also the whole family, especially my wife. When asked Lindsey said: "We wanted to keep everything as normal as possible and as least clinical as possible. I dont have a bucket list because Ive had such a wonderful life. The 38-year-old, who won eight Grand Finals and 20 international caps during a long and memorable career, has a ravaging form of motor neurone disease. But its difficult because I dont want to sound too downbeat. Rob and his wife Lindsey, who cares for her husband full-time despite having to look after their three young children and holding down a job as a physiotherapist, are the subjects of BBC documentary Rob Burrow: Living with MND, which airs next Tuesday. I couldn't function without her, it's that simple. Rob Burrow Living with MND: Fans react to 'heartbreaking and inspiring' documentary on former rugby star The 40-year-old requires constant care due to the life-altering disease Karl Matchett. It charts the romantic tale of how tiny Rob Burrow conquered brutal old rugby league against all odds, and helped turn Leeds into a powerhouse as they dominated the sport with homegrown stars who came up through the academy with him. In late 2019, Rob Borrow and his family learned that he had an incurable disease that would require 24-hour care. Rob points out wryly that, even though he doesnt really like hearing himself, it is far better that it is his accent rather than an American robot voice like Stephen Hawking. Mackenzie Heaton tweeted: "Brings a tear to the eye! has a ravaging form of motor neurone disease, Observer's report on the 2011 Grand Final. But maybe there is a link. Rob still smiles easily and breaks his silence when he laughs. With your help, we hope to save other families from the heartache of an MND diagnosis in the future. Order yours now by CLICKING HERE, HEADINGLEY STADIUM, ST MICHAELS LANE, HEADINGLEY, LEEDS, LS6 3BR, Match winner Austin says he will savour Saints victory. If you need help or advice on donating, were only a phone call or email away. It's there in the family's mind. There will be 7,777 places available, in honour of Robs iconic shirt number at Leeds Rhinos. I am stable now. Rob burrow receiving his MBE today for his services to rugby league and the MND Community in London, with his wife Lindsay. I did not think she signed up to look after me so soon," he jokes. Dr John Hamlin, 53, is a consultant gastroenterologist at Leeds Teaching Hospitals. ", Glittering drama based on the audacious Brinks-Mat security depot heist, A corrupt copper and a Leeds gangster are bound together by decades of dishonesty. Now an MND Association Patron, Rob is one of an estimated 5,000 adults in the UK currently living with MND. Its quiet and peaceful in the summerhouse where Rob and Lindsey Burrow sit together. Burrow, who had already won the Harry Sunderland Trophy as man of the match in the first of the Rhinos' previous Old Trafford victories over Saints in 2007, scored a brilliant individual try in the first half, then laid on the match-winner late in the second for Ryan Hall with another thrilling scamper. I absolutely hate sympathy and, while I appreciate the empathy people feel for me, I want to be as normal as possible. Feb 22 An amazing donation! See today's front and back pages, download the newspaper, order back issues and use the historic Daily Express newspaper archive. Across the chest - 38 stripes to represent Rob's age Along the back - The distinctive Rob Burrow and MND Association logo with 10 from the sale of every shirt going to the MND Association Across the heart - Rob Burrow's iconic number 7 with the Leeds Rhinos badge at its centre Affecting up to 5,000 adults in the UK at any one time, the condition can really limit a person's life. "The stress he puts on his body for me, it's unbelievable. I cant believe what I did.. "I don't think I would be here today without meeting him less than a week into my diagnosis. I imagine the droll way Rob might have delivered that line 18 months ago. She now looks after him 24 hours a day after his MND diagnosis. A mural depicting Rob Burrow is seen near the Emerald Headingley Stadium. Brave and humbling to let us in. ", "Kev is like a brother," says Burrow. ", Thank you for sharing your wonderful family with us. Leeds Rhinos Commercial Director Rob Oates added: It is fantastic to see our partners at Oxen working so closely with the MND Association, a cause that is close to the heart of all Rhinos fans. As long as Rob can use his legs we'll keep him going. I have read it and Dirs has captured Robs old voice, and good cheer, while documenting the two love stories framing his life. Rob Burrow sidesteps past Paul Wellens on his way to a memorable try in Leeds Rhinos Grand Final win in 2011. Geoff is so positive and thats where Rob gets it from, Lindsey says. Among hundreds of messages of praise, Burrow, who was diagnosed with MND in 2019, said: "Hope you had a great day Alfie. London, England, United Kingdom Founder VPS GB Jun 2018 - Present4 years 9 months London, United Kingdom ITC Secure 1 year 3 months L1 NSOC Engineer Apr 2019 - Sep 20196 months London, United. I am much younger and my body was a lot stronger when I got diagnosed. Wenn Sie Ihre Auswahl anpassen mchten, klicken Sie auf Datenschutzeinstellungen verwalten. Kevin starts the challenge on Sunday 13 November. Im tougher than I look.. In an Interview with ITV Calendar at Headingley Stadium, he told Duncan Wood: "I believe lockdown has accelerated my demise because it got me out of my routine. But the kids keep us busy and theres never a dull moment, is there, Rob? I know all the great benefits of sport so I wouldnt want to put anybody off playing. It is like conducting two contrasting interviews simultaneously but they make it easy. "Rob obviously wants to start games, but he's shown humility and integrity to do things for the benefit of the team. I dont think you ever know your inner strength until you get told you are dying, says the former, Lindsey Burrow and Rob Burrow at home in Pontefract. Looking back we had everything. Sometimes, I just keep quiet. The 38-year-old, who won eight Grand Finals and 20 international caps during a long and memorable career, has a ravaging form of motor neurone disease. It is a challenge interviewing a man who cannot speak but Rob uses a voice app called Eyegaze to express his thoughts. We have spoken about life and death, disease and love, hope and sadness. When we first spoke to you in April I felt Rob looked very drawn. Its really tough doing those interviews, but I dont want people to be sad. Rob Burrow has no regrets about playing rugby league and would not discourage his children from following in his footsteps. He looks healthier., Rob says: Im feeling exactly the same as I did three months ago. Bei der Nutzung unserer Websites und Apps verwenden wir, unsere Websites und Apps fr Sie bereitzustellen, Nutzer zu authentifizieren, Sicherheitsmanahmen anzuwenden und Spam und Missbrauch zu verhindern, und, Ihre Nutzung unserer Websites und Apps zu messen, personalisierte Werbung und Inhalte auf der Grundlage von Interessenprofilen anzuzeigen, die Effektivitt von personalisierten Anzeigen und Inhalten zu messen, sowie, unsere Produkte und Dienstleistungen zu entwickeln und zu verbessern. Hed do a better job than Bo-Jo, Burrow replies, the laugh muffled inside him. Yet she turns up every morning with a smile on her face knowing what the day ahead looks like, knowing I need help with every single thing. Saturday, 4th March 2023See today's front and back pages, download the newspaper, order back issues and use the historic Daily Express newspaper archive. By donating to our appeal, you can help us create The Rob Burrow Centre for Motor Neurone Disease, which will see all MND services . It has completely changed my life, he says. "He'll sit and watch television and I'll make him his breakfast and get him his lunch and take him to the toilet throughout the day. Were out in the garden in Castleford, at the home of Robs parents, and there are times when its possible to almost forget the deadly impact of motor neurone disease. Rob Burrow celebrates his eighth Grand Final victory in his last game for Leeds in 2017. he played 20 times for Great Britain and England in a celebrated career, It is a challenge interviewing a man who cannot speak. We use your sign-up to provide content in ways you've consented to and to improve our understanding of you. I crave anything I cannot eat, especially when the kids get a Dominos [pizza]. I never feel I will be out of here before I am done.. Rob is such a wonderful man and I am the person I am because of him. There are incredibly emotional scenes when she talks about the prospect of life after Rob. I want to make the most of the time I have left, ob Burrow can no longer talk and yet, on a rainy bank holiday evening at home in Pontefract, he answers another of my questions about life and death. I was really encouraged when I saw Dr Jung. The prognosis was bleak because Burrow was told his life expectancy, while declining rapidly from an incurable disease, would be unlikely to stretch beyond two years. Rob puts it down to bad luck. We are pleased to announce that the tickets for our Summer Charity Ball in aid of The Rob Burrow Centre for MND Appeal are now available to Liked by Antony Bray. Everyone has their own way of dealing with things., The Burrows have been boosted by a recent consultation with Robs specialist in Leeds. Ive got too many reasons to live., They were proud when Maya auditioned successfully for a part in a television show on Nickelodeon, as well as a role in Carmen. The. Powerful, powerful men, heartwarming & moving. Rob Burrow has no regrets about playing rugby league and would not discourage his children from following in his footsteps. Thank you for sharing my story." Mum, Jackie, said her rugby-mad son was . A huge well done and thank you to Oxen for producing this shirt to mark this special relationship and continuing to raise funds to support us in our fight against MND.. But his demeanour makes his situation no less desperate. I have run out of superlatives to describe her. Kevin's efforts have led to over 2 million being donated to an array of MND charities. "What a night, what a season we've had," added Sinfield, who kicked six goals from seven attempts but was happy to be completely overshadowed by the 5ft 5in Burrow. But if she had been negative it would not have changed my outlook. The former Leeds and Great Britain scrum-half is now confined to a wheelchair and unable to perform basic functions without help as motor neurone disease takes an increasing hold of his body. I could not get through this without the love and support of Lindsey.". As Rob types, Lindsey says: Hes more interested in kicking a football at the moment but I think hes got Robs sporting genes. In one heartbreaking scene on the documentary, Burrow's wife, Lindsey, said: "[Rob] always says, 'Find someone else, you're still young' There will never be anyone else.". The book goes on to reveal that Lindsey carries Rob upstairs to bed every night. But his mum and his dad have been great and its given Geoff such focus. Yet, the family are determined to make the most of the time they have left with Burrow. He avoids another heavy tackle, sidesteps Saints full-back Paul Wellens, putting him on his backside, and skips past an attempted tap-tackle. But I dont process that thought because thats when you give up. I tell Rob how, when I interviewed Sinfield a week after his seventh marathon, I was impressed all over again. My sole goal is to see my kids reach some milestones and Mayas achievement was amazing. Rob Burrow: Its beautiful being cared for by the only girl youve ever loved, ts quiet and peaceful in the summerhouse where Rob and Lindsey Burrow sit together. Lindsey says: When you look in Robs mouth you see quite a lot of muscle wastage with his tongue so he needs food he can swallow easily. Dr Jung says Rob is a favourite patient because of his positivity and spirit, and also because he has done so much to raise awareness of MND. The 29-year-old has endured a testing year even by the standards of his Leeds team-mates, having lost his place as the starting scrum-half and been forced to adapt to a new role as an impact player off the interchange bench. I got sent the first 30,000 words, Lindsey says, and I couldnt put it down. I can express myself again., Leeds Rhinos 2001-17493 appearances, 198 tries, 157 goals, 5 field goals, 1111 pointsEngland 2003-13 15 appearances, 12 tries, 12 goals, 72 pointsGreat Britain 2005-07 5 appearances, 4 tries, 9 goals, 34 points, Lindsey says the eye-tracking device has been such a lifeline because its Robs only means of communication. He played games and he was not able to remember scoring tries or he didnt know the score afterwards. She says their acceptance of death means that our clinic is not morbid or morose. I can still go to the gym on my own for an hour at 6 am, I can play with the kids, I can do my work as a physio while being Robs carer. Rob Burrow MBE (@Rob7Burrow) October 18, 2022 "I didn't think she had signed up to look after me so soon. I dread the day I leave Lindsey and the kids behind. It is full of compassion, tenderness and love. For people who have been through tough times with Covid it will make them feel that, no matter how hard things become, there is always something to look forward to in life. Set up your fundraising page for our MND Centre Appeal. Rob Burrow: Living With MND was aired on BBC2 on Tuesday 18 October and is available on iPlayer. Rob told presenter Duncan about how much he admires his wife for looking after her and that MND doesn't just affect him but his whole family. Rob Burrow leaves BBC viewers in tears as footage shows decline from MND Rob Burrow left viewers in tears after he scooped an accolade at the BBC's Sports Personality of the Year awards. I also receive longer and more textured responses from Rob when Lindsey emails his answers. "When you start to be reliant on aids and adaptations that you become reliant on them so I think being a physiotherapist you know 'no pain no gain' sort of thing, we'll keep him going as long as we can do.". Riluzole, for example, is the "only medication that's shown a survival benefit for people with motor neurone disease". He continued: "You expect to have to do these sorts of things when you are old and have been together for ages. One day, before I know it, I wont be able to enjoy these timeless moments. The book helped me understand how much Rob still wants to be treated normally. Im a bit nervous about the launch because I dont like to be in the spotlight, he says. Sign up to the Rob Burrow Leeds Marathon. Now an MND Association Patron, Rob is one of an estimated 5,000 adults in the UK currently living with MND. In less than a year Rob has lost his voice and ability to walk, he has difficulty. I would have been disappointed with myself because look at the way the club helped me through the disease., Even when I remember the shimmering blue streak of Burrow in that 2011 Grand Final, and contrast it silently with the motionless man in the damaged shell of his body, Rob and Lindsey offer a fresh perspective. Rob explains that his darkest period occurred soon after he lost the ability to talk late last year just as the second lockdown gripped the country. Rob is soon joking that one of his biggest gripes is an unchanging diet. It makes me want to see more triumphs., But there is sadness too. At the end of the day she has to assist me upstairs and put me to bed. Definitely. Since then he has used his profile to shine a light on the devastating disease, teaming up with other sportsmen including Doddie Weir and Stephen Darby to raise awareness and call for more research into the disease. Weir's passing was announced on Saturday and many have paid. Since my diagnosis I see the moment as it is and find meaning in it. Also featured on the documentary, the second focusing on Robs fight with MND, are interviews with his family, and fellow MND Association patron Kevin Sinfield. It is a moving and intimate account of how the family cope with the debilitating illness and yet somehow remain upbeat, with Burrow maintaining he is not giving in, right until my last breath as he has too many reasons to live. Thank god I'm only small because I think it would be impossible for her. Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final. I know I am still their daddy but, when its not on your terms, it is horrible. This leads to dependency and a reduced life span.". His voice echoes around us: I would love Jackson to play and Id support him whatever path he chose.. There is currently no cure for the degenerative disease. Proceeds ToRob Burrow MND FundLeeds Rugby League Programmes 1982- 2010 | Sports Memorabilia, Rugby League Memorabilia, Programmes | eBay! I appreciate the simple things. There is no cure for motor neurone disease, but treatment can help to relieve symptoms and may slow down the condition's progression. Were out in the garden in Castleford, at the home of Robs parents, and there are times when its possible to almost forget the deadly impact of motor neurone disease. Rob laughs because he knows his dad. But his eyes confirm he is laughing. The reason for doing this is to raise awareness about how brutal and cruel and devastating MND is and that it doesnt just affect the person, it affects the whole family. I have to ask the school to give her time off, Lindsey says. The powerful programme was shortlisted for a National Television Award in 2021. In this heart-breaking 30-minute BBC Two film, viewers get unparalleled access to his life. You walked off the pitch but it was difficult. We have shared an unexpected amount of laughter as this extraordinary couple set me at ease despite Robs harrowing illness. I think its uplifting, she says of the book. Robs small stature made me worry and, being a physiotherapist, I understood the injuries. Rob Burrow hopes drug will help in his battle with Motor Neurone Disease The 38-year-old was diagnosed with MND in December 2019 and is now confined to a wheelchair. It was an early sign he had contracted Covid but, as they both stress, he was just a little washed-out as he recovered fully from the virus.
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